This page includes links to all the resources on prostate cancer contained within the Michigan Cancer Consortium Web site and, in some cases, to external prostate cancer awareness resources of interest. We encourage you to use this information to help MCC member and partner organizations promote prostate cancer awareness and accomplish the MCC Prostate Cancer Goal for 2009-2015.
"Facts About Prostate Cancer" (Michigan Department of Community Health fact sheet; September 2011 revision) (available as an Adobe Acrobat PDF file)*
This Michigan Department of Community Health fact sheet includes statistics on prostate cancer incidence and mortality, stage at diagnosis, risk factors, and screening and diagnosis.
"September is Prostate Cancer Awareness Month" (Michigan Department of Community Health fact sheet; September 2010 revision) (available as an Adobe Acrobat PDF file)* This fact sheet includes information about the disease of prostate cancer and its toll on Michigan residents. It also includes information about prostate cancer risk factors and symptoms, prostate cancer screening, informed and shared decision-making, and a variety of resources, including the MCC decision aid for the treatment of early stage prostate cancer.
"Prostate Cancer in Michigan: Improving the Quality of Life for Prostate Cancer Survivors" (Michigan Department of Community Health fact sheet; January 2007) (available as an Adobe Acrobat PDF file)*
This Michigan Department of Community Health fact sheet includes data and general information about prostate cancer incidence, an explanation of how prostate cancer differs from other cancers, and what is being done in Michigan to help men make informed decisions regarding prostate cancer treatment.
"Prostate Cancer Initiatives" (Centers for Disease Control and Prevention, Division of Cancer Prevention and Control) (available as an Adobe Acrobat PDF file)*
Through prostate cancer control initiatives, CDC provides the public, physicians, and policy makers with the information they need to make informed decisions about the potential risks and benefits of prostate cancer screening and follow-up. This fact sheet discusses the burden of prostate cancer, risk factors, screening, and the accomplishments, ongoing work, and future directions of the CDC initiatives.
Fact Sheets for Symptoms After Prostate Cancer
Men with prostate cancer often have troubling symptoms that continue after treatment has ended. A series of 14 new fact sheets has been developed to help men and their loved ones manage these symptoms and other problems that can occur following treatment. Each fact sheet describes a symptom, gives practical tips for managing it, and indicates when further professional help is needed. These helpful fact sheets were developed by a team of prostate cancer survivors, nurses and physicians with expertise in prostate cancer in collaboration with the Michigan Department of Community Health. They have also developed a list of Web sites that can be used to help men and their loved ones learn about prostate cancer.
"Managing Symptoms After Prostate Cancer: Bowel Problems After Radiation" (September 2009; available as an Adobe Acrobat PDF file)*
"Managing Symptoms After Prostate Cancer: Coping with Cancer Stress — Skills for Patients and Caregivers" (September 2009; available as an Adobe Acrobat PDF file)*
"Managing Symptoms After Prostate Cancer: Coping with Hormone Changes from Prostate Cancer Treatment" (September 2009; available as an Adobe Acrobat PDF file)*
"Managing Symptoms After Prostate Cancer: Feeling Like a Man After Prostate Cancer Treatment" (September 2009; available as an Adobe Acrobat PDF file)*
"Managing Symptoms After Prostate Cancer: Listening and Talking — Family Communication and Prostate Cancer" (September 2009; available as an Adobe Acrobat PDF file)*
"Managing Symptoms After Prostate Cancer: Support for the Spouses/Partners of Prostate Cancer Patients" (September 2009; available as an Adobe Acrobat PDF file)*
MCC Prostate Cancer Patient Educational Materials and Web Site www.ProstateCancerDecision.org The MCC Prostate Cancer Action Committee operates this site to help inform early prostate cancer patients. The site includes an easy-to-navigate Web version of the MCC booklet Making the Choice: Deciding What to Do About Early Stage Prostate Cancer, as well as an interactive tool that enables patients to determine five-year survival rates using their prostate specific antigen (PSA) test results, tumor state, and grade.
Web site visitors can download an Adobe Acrobat PDF English- , Spanish- , or Arabic-language version of the Making the Choice booklet, or they can order it in a color-printed format or as an audio set containing one CD and one cassette. A link to an Adobe Acrobat PDF English-language version of the booklet as adapted by the South Puget Intertribal Planning
Agency in Shelton, WA, for use by members of five Northwest Tribes
(Chehalis, Nisqually, Shoalwater Bay, Skokomish, and Squaxin Island) is also included.
Public Service Announcement (PSA) Promoting Prostate Cancer Awareness (Note: This PSA was produced in October 2011; it is available as an MP3 audio file that is 1 minute in length.)** In this English-language radio spot produced by the Michigan Department of Community Health in conjunction with the MCC and the Michigan Association of Broadcasters, a prostate cancer survivor named Lonnie encourages men who think they may have prostate cancer to get checked and, if diagnosed, to read, learn, talk with their doctor, and make decisions. The announcer encourages men who have been diagnosed to talk with their healthcare provider about options and also visit the Consortium's www.ProstateCancerDecision.org website to learn more. The PSA is airing on radio stations throughout Michigan during October,
November and December 2011. MCC member and partner organizations are encouraged to promote it and also use the PSA as an optional "on hold" message in their organizations.
Centers for Disease Control and Prevention (CDC): Prostate Cancer Screening: A Decision Guide www.cdc.gov/cancer/prostate/publications/decisionguide/
Developed by the CDC, this guide discusses the prostate, prostate cancer, and screening tests in an easy-to-read question and answer format. The guide is designed to help men decide whether screening is right for them. To order the guide, visit wwwn.cdc.gov/pubs/dcpc1.aspx#prostate.
CDC: Prostate Cancer Screening: A Decision Guide for African Americans www.cdc.gov/cancer/prostate/publications/aadecisionguide/
Developed by the CDC, this guide discusses the prostate, prostate cancer, and screening tests in an easy-to-read question and answer format. The guide is designed to help African American men decide whether screening is right for them. To order the guide, visit wwwn.cdc.gov/pubs/dcpc1.aspx#prostate.
National Cancer Institute (NCI) — Publications Locator https://cissecure.nci.nih.gov/ncipubs/searchResults.asp?subject1=Prostate
Locate, preview and order prostate cancer education resources from the NCI. Available items include: What You Need to Know About Prostate Cancer; Understanding Prostate Changes: A Health Guide for All Men; Understanding Treatment Choices for Prostate Cancer: Know Your Options; and more.
NCI — Understanding Prostate Changes: A Health Guide for Men
In August 2004, the NCI released an updated version of its patient education booklet regarding prostate changes. The booklet explains the facts and symptoms related to prostate conditions; the changes common at various stages of life; and the possible next steps to consider in terms of testing and diagnosis when certain changes do occur. The booklet is intended to help ease patients' concerns during the stressful time between receiving an abnormal result and a diagnosis by explaining commonly used medical terms in easy-to-understand, everyday language and by including sample questions patients can ask during appointments to facilitate patient-provider communication about changes or abnormal results. Copies of the booklet are available free and can be ordered online at https://cissecure.nci.nih.gov/ncipubs/details.asp?pid=148 or by calling (toll-free) at 800-4-CANCER.
Prostate Cancer Screening: A Matter of Routine or Patient Choice? A Discussion for Policy Makers (available as an Adobe Acrobat PDF file)*
This discussion booklet (published in 2001) presents the benefits and harms of the PSA test from both the individual and population perspectives. The content reflects the clinical, public health, and health care policy knowledge of the members of the Association of State and Territorial Chronic Disease Program Directors (ASTCDPD) Prostate Cancer Screening Committee. It was developed by the ASTCDPD under a cooperative agreement from the U.S. Centers for Disease Control and Prevention.
Cancer Survival Toolbox www.canceradvocacy.org/toolbox
The Cancer Survival Toolbox is a free, self-learning audio program that has been developed by leading cancer organizations to help people develop important skills to better meet and understand the challenges of their illness. While created primarily for people who have been recently diagnosed with cancer, the Toolbox can help anyone who is facing hard decisions and changes in life due to cancer. Family members and caregivers can also use the Toolbox on behalf of a child or anyone else affected by cancer.
Inside Cancer http://insidecancer.org
This award-winning Web site, operated by the Dolan DNA Learning Center at Cold Spring Harbor Laboratory, offers users a multimedia guide to cancer biology. Through animations and expert interviews, visitors learn the hallmarks of cancer, cancer causes and prevention, cancer diagnosis and treatment, and cancer pathways. The site was produced by a grant from the National Center for Research Resources, a component of the National Institutes of Health.
Treating Prostate Cancer: A Guide for Men With Localized Prostate Cancer(Agency for Healthcare Research and Quality Consumer Summary Guide; July 2008) (available as an Adobe Acrobat PDF file)*
This guide is designed to help consumers work with their health care providers to treat localized
prostate cancer. The information in this guide comes from Comparative Effectiveness of Therapies for Clinically Localized Prostate Cancer (2008), a detailed research report review written by the Minnesota Evidence-based Practice Center. The guide covers research about four common prostate cancer treatments and their side effects: watchful waiting; radical prostatectomy; radiation; and hormone treatment.
Treatments for Clinically Localized Prostate Cancer (Agency for Healthcare Research and Quality Clinician Summary Guide; July 2008) (available as an Adobe Acrobat PDF file)*
This guide summarizes clinical evidence comparing the effectiveness and
safety of treatments for clinically localized prostate cancer. It
discusses expectant management and three active treatments (radical
prostatectomy, radiation therapy, and hormonal therapy). This guide
does not cover nutritional supplements. It also does not cover some
newer treatments (cryotherapy, high-intensity focused ultrasound, and
laparoscopic or robotic-assisted prostatectomy) for which there is
little research about comparative effectiveness. The source material for this guide is Comparative Effectiveness of Therapies for Clinically Localized Prostate Cancer (2008), a systematic review of 592 research publications prepared by the Minnesota Evidence-based Practice Center.
MCC Prostate Cancer Control Plan for Michigan (2005)
The MCC Advisory Committee on Prostate Cancer was convened in 2004 to review and revise the 1998 Prostate Cancer Control Plan for Michigan. A panel of prostate cancer experts and advocates assessed progress made since 1998, the current state of the science, and the experience of the panel’s members to develop recommendations to guide statewide activities for the next five years. The Committee formed three workgroups to focus on 1) primary and secondary prevention, 2) treatment, and 3) survivorship issues. Crosscutting issues of epidemiology, accessibility, disparities, and genetics were also considered. A goal was identified for each of the three focus areas, accompanied by specific measurable objectives and strategies to achieve the desired outcomes.
MCC Prostate Health Awareness Program Tool Kit www.michigancancer.org/Resources/ProstateHealthAwarenessToolKit.cfm The MCC Prostate Health Awareness Program consists of a one-hour slide show presented by trained volunteers to men and women in a community setting, using terms and elements that are explained in easy-to-understand, non-technical language. It was developed for the Consortium by the Barbara Ann Karmanos Cancer Institute; funding was provided by the Michigan Department of Community Health and administered by the Michigan Public Health Institute in support of the MCC. An additional presentation specifically for Hispanic audiences was developed and focus-group tested for the Consortium by Wayne State University under the guidance of Karmanos; that program is now available in both English and Spanish. The online tool kit available through the Michigan Cancer Consortium Web site contains electronic copies of all training materials developed to date.
Improving Cancer Outcomes for African Americans in Michigan www.michigancancer.org/WhatWeDo/ImprovingCancerOutcomesAfricanAmericans.cfm
This 2002-2004 project was designed to reduce the unequal burden of cancer and improve the quality of life of African Americans in Michigan. The initiative was based on a community engagement model in which African-American community representatives from across socio-economic strata were organized to provide leadership in developing methods to best engage members of their communities to address the issues of cancer. Design Teams were formed in each of the five selected communities to plan and implement activities to engage the larger community to assist in accomplishing the goals of the project through a statewide initiative. The major cancers addressed by the design teams were breast, cervical, colorectal, and prostate.
Michigan Cancer Survivorship Resource Guide (revised June 2011)
One of the Michigan Cancer Consortium’s current goals is to increase Michigan cancer survivors’ awareness of, and access to, survivorship resources and services. The Michigan Cancer Survivorship Resource Guide can help people diagnosed with cancer, their families, and loved ones find assistance and support. The information, originally in Adobe Acrobat PDF format, has been converted to a searchable database. The Resource Guide database is organized by counties and can be used by both providers and cancer survivors to find resources and support services.
(Note: This poster received the "Best Program Poster" award at the 7th Annual American Psychosocial Oncology Society Conference, Feb. 18-20, 2010 in New Orleans.)
The following presentation was prepared for Michigan Cancer Consortium use. It was presented to the MCC Board of Directors during the Board's Feb. 18, 2004 meeting. (Please Note: Reproduction of the presentation in its entirety is permitted. If a portion of the presentation is used or any of slides are altered, all logos and references must be removed.)
The following presentation was prepared by the MCC Advisory Committee on Prostate Cancer for Michigan Cancer Consortium use. It was presented to the MCC Board of Directors during the Board's Feb. 15, 2006 meeting. (Please Note: Reproduction of the presentation in its entirety is permitted. If a portion of the presentation is used or any of slides are altered, all logos and references must be removed.)
The following presentations were prepared by the MCC Prostate Cancer Action Committee for Michigan Cancer Consortium use. They were presented to the MCC Board of Directors during the Board's Sept. 27, 2006 meeting. (Please Note: Reproduction of each of the presentations in its entirety is permitted. If a portion of a presentation is used or any of slides are altered, all logos and references must be removed.)
Centers for Disease Control and Prevention (CDC), Division of Cancer Prevention and Control www.cdc.gov/cancer/
As a leader in nationwide efforts to ease the burden of cancer, the CDC Division of Cancer Prevention and Control works with national cancer organizations, state health agencies, and other key groups to develop, implement and promote effective strategies for preventing and controlling cancer.
CDC — Prostate Cancer Control Initiatives www.cdc.gov/cancer/prostate/
Here, you will find information about the burden of prostate cancer, early detection, and treatment. You also will be able to read about the CDC's activities in the area of prostate cancer control.
Center for Prostate Disease Research www.cpdr.org
This Department of Defense site, Center for Prostate Disease Research, integrates basic and clinical science to develop promising detection techniques and treatment for prostate disease. Find information for patients, including links to support groups. Articles are available for professionals. There is also a Q & A section, for questions and answers between patients and doctors.
National Cancer Institute (NCI) — Cancer Genetics Network http://epi.grants.cancer.gov/CGN
The NCI sponsors the Cancer Genetics Network (CGN), a national network of centers specializing in the study of inherited predisposition to cancer. The resource is available to the research community at large to support studies on the genetic basis of human cancer susceptibility, the integration of this information into medical practice, and the behavioral, ethical, and public health issues associated with human genetics. The growing database has information on 24,000 individuals (16,000 families) with cancer and/or a family history of cancer. Data are available on: cancer type; a four-generation cancer family history; genetic testing (if performed); genetic mutation if collected in a CGN special study; any known genetic syndromes in the family; bio specimens on many enrollees; annual follow-u on all enrollees; history of tobacco use; and socio-demographic information. In addition, more data are available on subsets of enrollees who have participated in CGN special studies. The population enrolled makes possible research on both common and uncommon tumors. The unique infrastructure enables studies on genes of moderate and low penetrance, as well as more easily identified high penetrance genes.
NCI — Cancer Risk: Understanding the Puzzle http://understandingrisk.cancer.gov
This site offers a reliable source for individuals and healthcare providers who are seeking: risk information for six common cancer types (breast, cervical, colorectal, lung, prostate, and skin); steps to reduce an individual's risk; tips for understanding cancer news stories; and tools an individual can use with his/her provider to manage his/her cancer risk.
NCI — CANCERLIT Topic Searches (Male Reproductive Cancers)
Review CANCERLIT topic searches related to male reproductive cancers, including prostate cancer. Select the desired timeframe (i.e., all, last 30 days, last 60 days, and last 90 days), and then view the collection of articles. Abstracts are provided online for some articles. Abstracts are provided online for some articles.
NCI — Prostate Cancer Home Page www.cancer.gov/cancer_information/cancer_type/prostate
The NCI Prostate Cancer home page includes an overview of prostate cancer, along with information about treatment; prevention, genetics and causes; screening and testing; clinical trials; cancer literature; research and related information; and statistics.
American Association for Cancer Education (AACE) www.aaceonline.com
The AACE fosters cancer education by individuals throughout the world who, either due to professional obligations or personal interest, are involved in cancer education. The association provides a forum for health-related professionals concerned with the study and improvement of cancer education at the undergraduate, graduate, continuing professional, and paraprofessional levels. Active members include physicians, dentists, nurses, health educators, social workers, occupational therapists, and other professionals interested in cancer education. Cancer education efforts are related to prevention, early detection, treatment, and rehabilitation.
American Cancer Society www.cancer.org
The American Cancer Society is dedicated to eliminating cancer as a major health problem by saving lives, diminishing suffering, and preventing cancer through research, education, advocacy, and service. Founded in 1913 and with national headquarters in Atlanta, the Society has 14 regional divisions and local offices in 3,400 communities, involving millions of volunteers across the United States.
American Society of Clinical Oncology — Cancer.Net Prostate Cancer-Specific Resources
The American Society of Clinical Oncology (ASCO) offers a Cancer-Specific Resources portal classified by specific disease type. Each disease portal includes a list
of national, not-for-profit organizations that may be helpful in finding
additional information, services and support. The MCC's "Making the Choice: Deciding What to Do About Early Stage Prostate Cancer" booklet and website (www.prostatecancerdecision.org) are featured in the Prostate Cancer-Specific Resources section.
CancerCare www.cancercare.org (English) www.cancercare.org/espanol (Spanish)
CancerCare is a national non-profit organization that provides free professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. The site features resources for people with cancer and their caregivers (including counseling, educational programs, information and referrals, and financial needs resources), as well as cancer care professionals and members of the media. Users may choose between English- and Spanish-language site pages.
CancerNetwork.com www.cancernetwork.com/prostate-cancer This site offers a summary of news/commentaries, reviews, handbooks, and other materials covering the continuum of prostate cancer issues. Many pages of information are available and are organized under topics such as epidemiology and risk factors, diagnosis, treatment, and psychosocial effects.
C-Change www.c-changetogether.org/
C-Change is comprised of the nation's key cancer leaders from government, business and nonprofit sectors. These cancer leaders share the vision of a future where cancer is prevented, detected early, and cured or managed successfully as a chronic illness. The mission of C-Change is to leverage the combined expertise and resources of its members to eliminate cancer as a (major) public health problem at the earliest possible time.
Lance Armstrong Foundation: LIVESTRONG Survivor Care www.livestrong.org
The LIVESTRONG SurvivorCare program offers counseling services, help with financial, employment or insurance issues, and information about treatment options and new treatments in development. LIVESTRONG SurvivorCare is for all cancer survivors, including those individuals diagnosed and their caregivers, family and friends.
Medscape Resource Center — Prostate Cancer www.medscape.com/resource/prostate
A collection of the latest medical news and information about prostate cancer diagnosis, treatment, and follow up. This resource center includes news, conference summaries, an ask the expert forum, articles, editorials, journal scans, treatment updates, clinical management modules, MEDLINE abstracts, and more.
National Coalition for Cancer Survivorship — Cancer Survival Toolbox www.canceradvocacy.org/toolbox
The Cancer Survival Toolbox is a free, self-learning audio program that has been developed by leading cancer organizations to help people develop important skills to better meet and understand the challenges of their illness. While created primarily for people who have been recently diagnosed with cancer, the Toolbox can help anyone who is facing hard decisions and changes in life due to cancer. Family members and caregivers can also use the Toolbox on behalf of a child or anyone else affected by cancer. Site visitors can read or listen to the Toolbox in English and Spanish, or download the files to read or listen later; Chinese transcripts are also available. The Toolbox includes 12 modules. Modules 1 through 6 cover six basic skills that can help people with cancer meet the challenges of their illness. Modules 7 through 12 build on the skills learned in the first six modules and relate them to specific aspects of cancer survivorship.
Prevent Cancer Foundation www.preventcancer.org/
The mission of the Prevent Cancer Foundation is cancer prevention and early detection through research, education, and community outreach to all populations, including children and the underserved. Its vision: "We will achieve significant reduction in cancer incidence and mortality by eradicating some cancers and transforming others into manageable chronic diseases."
US TOO
www.ustoo.org
Us TOO is a grassroots organization started in 1990 by prostate cancer survivors to serve prostate cancer survivors and their spouses/partners and families. It is a 501(c)(3) not-for-profit charitable organization dedicated to communicating timely and reliable information enabling informed choices regarding detection and treatment of prostate cancer. Ultimately, Us TOO strives to enhance the quality of life for all those affected by prostate cancer.
The Wellness Community www.thewellnesscommunity.org
The Wellness Community is a national non-profit organization dedicated to providing free emotional support, education and hope for people with cancer and their loved ones. The cornerstone of The Wellness Community is the “Patient Active Concept,” which encompasses the belief that patients who actively participate with their physicians and medical team in their fight for recovery can improve the quality of their lives and may enhance the possibility of their recovery. The site's Virtual Wellness Community offers cancer information, free, professionally moderated support groups in real-time for people with cancer and their caregivers (including teens), and a host of other resources for consumers and professionals. It also hosts physician and nurse lectures, nutritional workshops, mind-body programs, and other services. Both the site's resources and the online support groups are available in English and in Spanish.
Promoting Prostate Health Awareness Month
Resources to help you promote Prostate Health Awareness Month (observed in March) are available through the Michigan Cancer Consortium Monthly Theme Calendar.
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