End-of-Life - Patient Resources

Education Materials:

  • Patient and Family Teaching Sheets – Hospice and Palliative Nurses Association
    These teaching sheets are available in Spanish and Chinese and include a wide variety of topics from Complementary Therapies, Incontinence, Constipation, Pain, Preparing Children and many other topics. 
  • Completing a Life: A Resource for Taking Charge, Finding Comfort, and Reaching ClosureMichigan State University
    An interactive CD-ROM and Web site inviting patients and families to learn about the practical, emotional, spiritual, and medical issues faced by those dealing with advanced illness.

  • End of Life: Helping with Comfort and Care - National Institute on Aging (July 2016)
    This online booklet (in PDF) contains chapters related to issues that a patient and their family may experience as they begin to receive end-of-life care. The chapters focus on finding care at the end of life, factors to consider when making health care decisions near the end of life, and finding help for grief.

Websites of Interest:

  • Your Serious Illness Journey and Palliative Care - for patients with serious illness, this resource goes over palliative care and how it can help.

  • Nearing the End of Life - American Cancer Society (June 2016)

    This website provides information for advanced cancer patients and their families of the changes a patient may encounter near the end of life. Read in detail about the physical and emotional changes that occur near the end of life, and why communication between the patient, their family, and doctor is important.

  • Hospicenet.org
    Provides a variety of educational materials for patients, children and care givers
  • Caring Connections
    The National Hospice and Palliative Care Organization and National Hospice Foundation have created this website, which provides a wide range of free materials about end-of-life care.

  • American Hospice Foundation

    This site provides an overview of what hospice care consists of and contains links to articles that answer many of the frequently asked questions about hospice care.

  • End-of-Life care for People with Cancer

    The National Cancer Institute has created several fact sheets for cancer patients who are receiving end-of-life care. Topics include understanding hospice care; social support during end-of-life care; caregiver resources; tips for patients and families when talking about end-of-life care.

Books of Interest: