End-of-Life - Patient Resources

Education Materials:

  • Advance Directives: Planning for Medical Care in the Event of Loss of Decision-Making Ability – Michigan Office of Services to the Aging
    The Advance Directives
    booklet includes general information about advance directives, as well as specific information and fill-in-the-blank forms for durable powers of attorney for health care, living wills, do-not-resuscitate declarations, and declarations of anatomical gifts.

  • Completing a Life: A Resource for Taking Charge, Finding Comfort, and Reaching ClosureMichigan State University
    An interactive CD-ROM and Web site inviting patients and families to learn about the practical, emotional, spiritual, and medical issues faced by those dealing with advanced illness.

  • End of Life: Helping with Comfort and Care - National Institute on Aging (July 2016)
    This online booklet (in PDF) contains chapters related to issues that a patient and their family may experience as they begin to receive end-of-life care. The chapters focus on finding care at the end of life, factors to consider when making health care decisions near the end of life, and finding help for grief.
  • Patient and Family Teaching Sheets – Hospice and Palliative Nurses Association
    These teaching sheets are available in Spanish and Chinese and include a wide variety of topics from Complementary Therapies, Incontinence, Constipation, Pain, Preparing Children and many other topics. 

Websites of Interest:

  • American Hospice Foundation

    This site provides an overview of what hospice care consists of and contains links to articles that answer many of the frequently asked questions about hospice care.

  • Caring Connections
    The National Hospice and Palliative Care Organization and National Hospice Foundation have created this website, which provides a wide range of free materials about end-of-life care.

  • End-of-Life care for People with Cancer

    The National Cancer Institute has created several fact sheets for cancer patients who are receiving end-of-life care. Topics include understanding hospice care; social support during end-of-life care; caregiver resources; tips for patients and families when talking about end-of-life care.

  • Hospicenet.org
    Provides a variety of educational materials for patients, children and care givers
  • Nearing the End of Life - American Cancer Society (June 2016)

    This website provides information for advanced cancer patients and their families of the changes a patient may encounter near the end of life. Read in detail about the physical and emotional changes that occur near the end of life, and why communication between the patient, their family, and doctor is important

  • Your Serious Illness Journey and Palliative Care
    For patients with serious illness, this resource goes over palliative care and how it can help.

Books of Interest: